Literature
Intellectual disability has been a neglected topic in ethnographic research - and the works that exist are often scattered across different conversations. This database brings together all the publications in one place so that you can find writing on the themes, regions, and life-stages relevant to you (or discover that no-one has published any such research yet!)
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Author | Year | Title | Link |
|---|---|---|---|
Shruti Vaidya | 2026 | Affordances of Fun: An Ethnography of Special Educators and Intellectually Disabled Adults in India | |
Christine Sargent | 2026 | Making Down Syndrome: Motherhood and Kinship Futures in Urban Jordan | |
Simo Vehmas, Femmianne Bredewold, Reetta Mietola & Simon van der Weele | 2025 | Inherent vs. Contingent Vulnerabilities in the Care for People with Profound Intellectual and Multiple Disabilities | |
Shelley Dawson | 2025 | Long COVID vs. Functional Neurological Disorder: Punching Down | |
Priyasha Choudhary, Shubha Ranganathan | 2025 | Rethinking disability, care, and motherhood: lived experiences of disabled mothers in India | |
Don Kulick & Simo Vehmas | 2025 | Clashing Vulnerabilities, Disability and Conflict | |
Danilyn Rutherford | 2025 | Beautiful Mystery: Living in a Wordless World | |
Bindhulakshmi Pattadath | 2025 | Re-Engaging with the ‘Aging Body’: A Feminist Disability Perspective | |
SV Chetan | 2024 | Illustrating the experiences of students with learning disabilities in higher education: Comics‐based representation of fieldwork findings | |
Joshua O. Reno | 2024 | Home Signs: An Ethnography of Life beyond and beside Language | |
Hannah Quinn, Rebecca-Eli M. Long | 2024 | Consent-as-Method: Capacity to Consent of Cognitively Disabled People and Research Ethics Review | |
Bindhulakshmi Pattadath, Shubha Ranganathan, Mohammed Wakif Amin Hussain | 2024 | Aging, caregiving, and disability futurities: Challenging policy frameworks | |
Aaron J. Jackson | 2024 | Building strong foundations: listening to and learning from people with intellectual disabilities and their families | |
Aaron J. Jackson | 2024 | Beyond a logic of choice: the role of family narratives in ethical, person‐centred support for individuals with intellectual disabilities | |
Shruti Vaidya | 2023 | From problem-centered to centering relationalities: Engagements with disability and sexuality in India | |
Patrick McKearney & Tyler Zoanni | 2023 | Intellectual Disability | |
Lauren Stentiford, George Koutsouris, Alexandra Allan | 2023 | They think it's trendy to have a disability/mental-illness': disability, capital and desire in elite education | |
Hannah Quinn | 2023 | Crip Intimacy: Sockfriends, Sexuality, and ‘Cripped Things’ | |
Aaron J. Jackson | 2023 | Between us: Facilitated decision-making in the relational experience of profound intellectual disability | |
Paula Jacobs, Ethel Quayle, Heather Wilkinson, Kenneth MacMahon | 2021 | Relationships Matter! Utilising Ethics of Care to Understand Transitions in the Lives of Adults with Severe Intellectual Disabilities | |
Patrick McKearney & Anna Zogas | 2021 | Mentally Fit: Negotiating the Boundaries of Cognitive Disability | |
Aaron J. Jackson | 2021 | Worlds of Care: The Emotional Lives of Fathers Caring for Children with Disabilities | |
Tyler Zoanni | 2020 | The Ecology of Disabled Minds in Urban Uganda | |
Patrick McKearney | 2020 | What Escapes Persuasion: Why Intellectual Disability Troubles 'Dependence' in Liberal Societies | |
Matthew J. Wolf-Meyer | 2020 | Unraveling: Remaking Personhood in a Neurodiverse Age | |
Jocelyn D. Avery | 2020 | An Ethnography of Severe Intellectual Disability: Becoming 'Dirty Little Freaks’ | |
Christine Sargent | 2020 | Kinship, Connective Care, and Disability in Jordan | |
Anna Zogas | 2020 | Leveraging Ambiguity in the Clinic: Mild TBI and Veterans' Forgetting | |
Virginie Cobigo, Lynne A. Potvin, Casey Fulford, Hajer Chalghoumi, Mariam Hanna, Natasha Plourde & Whitney D. Taylor | 2019 | A Conversation with Research Ethics Boards about Inclusive Research with Persons with Intellectual and Developmental Disabilities | |
Vanessa Cox, Treena Orchard, Pamela Cushing & Elizabeth Anne Kinsella | 2019 | Mediators of Inclusion: Challenges to Including Adults with Mild Intellectual Disability in Qualitative Research | |
Stephanie Patterson & Pamela Block | 2019 | Disability, Vulnerability, and the Capacity to Consent | |
Saira A. Mehmood | 2019 | Using Ethnographic Methods to Determine Capacity to Consent amongst Individuals Diagnosed with Chronic Mental Illnesses | |
Megan S. Wright | 2019 | Who Decides? Legal Changes to Facilitate Inclusion of Participants with Impaired Cognition in Research | |
Marjorie Montreuil, Gail Teachman & Franco A. Carnevale | 2019 | Recognizing the Voices of Children with 'Cognitive Impairments' in Research | |
M. Ariel Cascio & Eric Racine | 2019 | Research Involving Participants with Cognitive Disability and Differences: Ethics Autonomy Inclusion and Innovation | |
Leonardo Carbonieri Campoy | 2019 | Bridging Worlds: Can Anthropology Be a Communicational Therapy? | |
Lauren R. Sankary & Paul J. Ford | 2019 | Ongoing Consent in Situations of Cognitive Vulnerability: Special Considerations in Implanted Neural Device Trials | |
John Aspler | 2019 | Making Research More Ethical for Adults with FASD: A Story of Stakeholder Engagement, Accommodation, and Inclusion | |
Jack Trammell | 2019 | Shifting Identities: Research on Macro and Micro Aspects of ID College Programs | |
Eran Klein | 2019 | Informed Consent for Closed-Loop DBS Psychiatric Research: Engaging End Users to Understand Risks and Improve Practice | |
Deborah R. Barnbaum | 2019 | Research Cohorts: Diverse Research Subjects, Similar Remedies to Errors in Consent | |
Christine Schneider & Eva Kahana | 2019 | Challenges of Participating in Research about Living with MCI among Disabled Veterans | |
Britteny M. Howell & Karrie A. Shogren | 2019 | Differing Understandings of Informed Consent Held by Research Institutions, People with Intellectual Disability, and Guardians: Implications for Inclusive, Ethical Research | |
Anne Kohler | 2019 | Assuming Capacity: Ethical Participatory Research with Adolescents and Adults with Down Syndrome | |
Claudia Fonseca &
Helena Fietz | 2018 | Collectives of care in the relations surrounding people with ‘head troubles’: family, community and gender in a working-class neighbourhood of southern Brazil | |
Tyler Zoanni | 2018 | The Possibilities of Failure: Personhood and Cognitive Disability in Urban Uganda | |
Patrick McKearney & Tyler Zoanni | 2018 | Introduction: For an Anthropology of Cognitive Disability | |
Patrick McKearney & Tyler Zoanni | 2018 | Cognitive Disability | |
Patrick McKearney | 2018 | Receiving the Gift of Cognitive Disability: Recognizing Agency in the Limits of the Rational Subject | |
Michele Friedner | 2018 | Beyond the Social | |
Manor-Binyamini & Iris | 2018 | Reasons for Marriage of Educated Bedouin Women to Bedouin Men with Intellectual Disability | |
James D. Faubion | 2018 | On Misfitness: Reflections in and out of Fashion | |
Faye Ginsburg & Rayna Rapp | 2018 | Cognitive Disability: Towards an Ethics of Possibility | |
Carys Banks | 2018 | Working through ethical and emotional concerns and uncertainties in ethnographic research with people with learning disabilities | |
Anna Zogas | 2018 | Thinking about Thinking: Mild Traumatic Brain Injury and Finding Continuity in US Military Veterans' Embodied Minds | |
Jeannette Pols & Brigitte Althoff & Els Bransen | 2017 | The Limits of Autonomy: Ideals in Care for People with Learning Disabilities | |
Don Kulick & Jens Rydström | 2015 | Loneliness and Its Opposite: Sex, Disability, and the Ethics of Engagement | |
Duncan P. Mercieca | 2013 | Living Otherwise: Students with Profound and Multiple Learning Disabilities as Agents in Educational Contexts | |
Rayna Rapp & Faye Ginsburg | 2011 | Reverberations: Disability and the New Kinship Imaginary | |
Jan Walmsley & Kelley Johnson | 2010 | Inclusive Research with People with Learning Disabilities: Past Present and Futures | |
Jack Levinson | 2010 | Making Life Work: Freedom and Disability in a Community Group Home | |
Pamela Block | 2007 | Institutional Utopias: Eugenics and Intellectual Disability in Brazil | |
Pamela Block | 2002 | Sexuality Parenthood and Cognitive Disability in Brazil | |
Rayna Rapp & Faye D. Ginsburg | 2001 | Enabling Disability: Rewriting Kinship Reimagining Citizenship | |
Tim Booth & Wendy Booth | 1999 | Risk, Resilience and Competence: Parents with Learning Difficulties and their Children | |
Sylvia van Maastricht | 1999 | Work, Opportunity and Culture: (In)competence in Greece and Wales | |
Susan Reynolds Whyte | 1999 | Slow Cookers and Madmen: Competence of Heart and Head in Rural Uganda | |
Richard Jenkins | 1999 | Towards a Social Model of (In)competence | |
Richard Jenkins | 1999 | Questions of Competence: Culture Classification and Intellectual Disability | |
Richard Jenkins | 1999 | Culture, Classification and (In)competence | |
Patrick Devlieger | 1999 | (In)competence in America in Comparative Perspective | |
Nancy Lundgren | 1999 | Learning to Become (In)competent: Children in Belize Speak Out | |
Michael V. Angrosino | 1999 | Mental Disability in the United States: An Interactionist Perspective | |
Mark Nuttall | 1999 | States and Categories: Indigenous Models of Personhood in Northwest Greenland | |
Charlotte Aull Davies | 1999 | Constructing Other Selves: (In)competences and the Category of Learning Difficulties | |
Michael V. Angrosino | 1998 | Opportunity House: Ethnographic Stories of Mental Retardation | |
Kelley Johnson | 1998 | Deinstitutionalising Women: An Ethnographic Study of Institutional Closure | |
Michael V. Angrosino | 1994 | On the Bus with Vonnie Lee: Explorations in Life History and Metaphor | |
Robert B. Edgerton | 1993 | The Cloak of Competence | |
Raymond McDermott | 1993 | The Acquisition of a Child by a Learning Disability | |
Robert B. Edgerton & Marcia A. Gaston | 1991 | I've Seen It All!: Lives of Older Persons with Mental Retardation in the Community | |
Jane Hubert | 1991 | Home-Bound: Crisis in the Care of Young People with Severe Learning Difficulties | |
John J. Gleason | 1989 | Special Education in Context: An Ethnographic Study of Persons with Developmental Disabilities | |
Lewis L. Langness & Harold Gary Levine | 1988 | Culture and Retardation: Life Histories of Mildly Mentally Retarded Persons in American Society | |
Sandra Z. Kaufman | 1986 | Life History in Progress: A Retarded Daughter Educates Her Mother | |
Robert D. Whittemore, L. L. Langness & Paul Koegel | 1986 | The Life History Approach to Mental Retardation | |
Robert D. Whittemore | 1986 | Theodore V. Barrett: An Account of Adaptive Competence | |
Robert B. Edgerton | 1986 | A Case of Delabeling: Some Practical and Theoretical Implications | |
Paul Koegel | 1986 | You Are What You Drink: Evidence of Socialized Incompetence in the Life of a Mildly Retarded Adult | |
Paul Koegel | 1986 | Social Support and Individual Adaptation: A Diachronic Perspective | |
L. L. Langness & Jim Turner | 1986 | It Wasn't Fair: Six Years in the Life of Larry B | |
Keith T. Kernan, Linda Hubbard & Kristina Kennan | 1986 | Living in the Real World: Process and Change in the Life of a Retarded Man | |
Jill E. Korbin | 1986 | Sarah: The Life Course of a Down’s Syndrome Child | |
Harold G. Levine & L. L. Langness | 1986 | Conclusions: Themes in an Anthropology of Mild Mental Retardation | |
Robert B. Edgerton | 1984 | Lives in Process: Mildly Retarded Adults in a Large City | |
Robert Bogdan & Steven J. Taylor | 1982 | Inside Out: The Social Meaning of Mental Retardation | |
Robert B. Edgerton | 1970 | Mental Retardation in Non-Western Societies: Toward a Cross-Cultural Perspective on Incompetence |